- Title
- “Empowering Us”: A community-led survey of real-world perspectives of adults with type 1 diabetes using insulin pumps and continuous glucose monitoring to manage their glucose levels
- Creator
- Read, Meaghan; Henshaw, Kim N.; Zaharieva, Dessi P.; Brown, Tim C.; Varga, Andrea E.; Bray, Christine; Cox, Michelle; Goody-Rohdin, Pär-Johan; Hider, Kim; Jelleyman, Paul; Jenkins, Alicia; Jones, Carolyn; Kerr, Peggy; Leach, Rob; Martin, Kim; Oreskovic, Natalie; O'Sullivan, Grant; Rucioch, Jasmin; Sims, Catriona; Smart, Carmel
- Relation
- Diabetes Research and Clinical Practice Vol. 202, Issue August 2023, no. 110830
- Publisher Link
- http://dx.doi.org/10.1016/j.diabres.2023.110830
- Publisher
- Elsevier
- Resource Type
- journal article
- Date
- 2023
- Description
- Objective: To conduct an Australian community-led survey of adults with type 1 diabetes (T1D), identifying priorities for, and barriers to, optimal use of advanced glucose management technologies. Research design and methods: A 30-question online survey of current or past users of insulin pump therapy (IPT), real-time continuous glucose monitoring (RT-CGM), or intermittently scanned CGM (isCGM) explored perceptions regarding device design, access, education, outcomes, and support. Results: Between November 2021 and January 2022, surveys were completed by 3,380 participants (age [mean ± SD] 45 ± 16 years; 62% female; 20 ± 14 years diabetes), with 55%, 82%, and 55% reporting experience with IPT, RT-CGM, and isCGM, respectively. Overall, most considered diabetes technology ‘(extremely) important’ for maintaining target glucose levels (98%) and reducing hypoglycaemia severity and frequency (93%). For most, technology contributed positively to emotional well-being (IPT 89%; RT-CGM 91%; isCGM 87%), which was associated with device effectiveness in maintaining glucose in range, comfort, and convenience. Barriers included affordability (IPT 68%; RT-CGM 81%; isCGM 69%) and insufficient information for informed choices about device suitability (IPT 39%; RT-CGM 41%; isCGM 36%). Conclusions: Technology is perceived by adults with T1D as important for managing glycaemia and emotional well-being. Modifiable barriers to use include affordability, and information regarding device suitability.
- Subject
- type 1 diabetes; insulin pumps; real time-continuous glucose monitoring; intermittently scanned continuous glucose; monitoring; lived experience; SDG 3; Sustainable Development Goals
- Identifier
- http://hdl.handle.net/1959.13/1490777
- Identifier
- uon:52984
- Identifier
- ISSN:0168-8227
- Rights
- © 2023 The Authors. Published by Elsevier B.V. This is an open access article under the CCBY-NC-ND license (http://creativecommons.org/licenses/by-nc-nd/4.0/).
- Language
- eng
- Full Text
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Goal 3: Good Health and Well-Being
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